A 7-year-old with a rare disease islooking for his perfect match.Asaya Bullock, from the Bronx, was not expected to live past age 2. He was diagnosed at 8 months old withIPEX syndrome, a rare condition that causes the immune system to malfunction and attack the body’s own tissues and organs.Despite the dire prognosis, Bullock made it to 7 years old, but he often suffers from crippling pain and lengthy illnesses — when he had the flu in 2018, it lasted for six weeks, leading him to miss a significant amount of school. He also needs weekly immunoglobulin replacement therapy treatmentsto help him fight infections.“It keeps on happening, and I don’t like it, and every time my sister wants to help, and she helps, but she just can’t,”Bullock told News 12.The Bullocks have been searching for yearsfor a bone marrow donorfor Asaya, with the help ofthe Icla da Silva Foundation. A transplant would help him live a more normal, healthier life. But because of his unique background — his father is African American and Charline is West Indian Caribbean — they haven’t been ableto find a match.The family is encouraging people tojoin Be the Match, a national registry of people that connects them to people in need. They hope that they’ll eventually find a donor who can help Asaya.Bronx 12His mother, Charline, said that she tells Asaya to keep calm during the day, and let out his pain when he’s in the bathroom.“I tell him everything is going to be okay, we’ll be alright, we’re going to get through this,” she said. “We are family, we always go through this as a family, and when you go to in the shower to bathe you scream your head off.”RELATED VIDEO: Meet Francia Raisa,Selena Gomez’s Actress BFF Who Gave Her a Kidney“There’s only one in a million that you just might be called to be a match,” CharlinetoldGood Morning America. “At least you know in your heart if you do get called and you are a match for somebody you saved a life. We all got to look out for one another.”“It’ll mean very much,” Asaya told News 12.
A 7-year-old with a rare disease islooking for his perfect match.
Asaya Bullock, from the Bronx, was not expected to live past age 2. He was diagnosed at 8 months old withIPEX syndrome, a rare condition that causes the immune system to malfunction and attack the body’s own tissues and organs.
Despite the dire prognosis, Bullock made it to 7 years old, but he often suffers from crippling pain and lengthy illnesses — when he had the flu in 2018, it lasted for six weeks, leading him to miss a significant amount of school. He also needs weekly immunoglobulin replacement therapy treatmentsto help him fight infections.
“It keeps on happening, and I don’t like it, and every time my sister wants to help, and she helps, but she just can’t,”Bullock told News 12.
The Bullocks have been searching for yearsfor a bone marrow donorfor Asaya, with the help ofthe Icla da Silva Foundation. A transplant would help him live a more normal, healthier life. But because of his unique background — his father is African American and Charline is West Indian Caribbean — they haven’t been ableto find a match.
The family is encouraging people tojoin Be the Match, a national registry of people that connects them to people in need. They hope that they’ll eventually find a donor who can help Asaya.
Bronx 12
His mother, Charline, said that she tells Asaya to keep calm during the day, and let out his pain when he’s in the bathroom.
“I tell him everything is going to be okay, we’ll be alright, we’re going to get through this,” she said. “We are family, we always go through this as a family, and when you go to in the shower to bathe you scream your head off.”
RELATED VIDEO: Meet Francia Raisa,Selena Gomez’s Actress BFF Who Gave Her a Kidney
“There’s only one in a million that you just might be called to be a match,” CharlinetoldGood Morning America. “At least you know in your heart if you do get called and you are a match for somebody you saved a life. We all got to look out for one another.”
“It’ll mean very much,” Asaya told News 12.
source: people.com
